(PRUnderground) January 25th, 2026
The North American Registry for Fibromuscular Dysplasia is thrilled to announce the enrollment of the 5,000th patient into the Registry. Fibromuscular dysplasia (FMD) is a lesser-known and under-diagnosed vascular disease that most commonly affects women and can result in serious health events, such as strokes, heart attacks, aneurysms, and dissections (tears in the inner wall of an artery). The North American Registry for FMD is currently the largest accumulation of FMD patient data in the world. Medical data are collected by Registry sites at FMD centers of excellence across North America with the goal of learning more about patient characteristics, outcomes, and best treatment practices. In January, the Registry added its 22nd site, Jobst Vascular Institute in Toledo, Ohio.
Dr. John Fish, vascular medicine director at Jobst, is leading Registry efforts at this new site. Said Dr. Fish, “We are enthusiastic about contributing to the broader research goals of the Registry. Jobst Vascular has an active and engaged patient population affected by FMD and our clinical team is deeply committed to improving outcomes for these patients through both clinical care and education.”
The Registry team expressed similar enthusiasm about the new Ohio addition. “We are very excited to welcome Jobst Vascular Center to the North American Registry for FMD. Northwest Ohio now has a Registry Center, potentially saving patients from this area a multi-hour drive across the state or a trip to Michigan,” said Dr. Heather Gornik, a cardiologist and vascular medicine specialist at University Hospitals in Cleveland, Ohio who treats patients with FMD and serves on the steering committee for the Registry. “Dr. John Fish is an outstanding vascular medicine specialist who has assembled a team of multispecialty experts to care for patients with FMD for all of their health issues.”
Prior data from the Registry has been used to inform best practices for treating patients with FMD, including guidance for newly diagnosed FMD patients to receive full head-to-pelvis imaging. This one-time imaging can identify any occult aneurysms or dissections in need of treatment. The continued growth of the Registry, both with the enrollment of more patients and the addition of new sites, will help to answer the many questions that still exist surrounding this under-researched disease.
The Fibromuscular Dysplasia Society of America (FMDSA), a public health charity founded in 2003, is the sponsor for the Registry. FMDSA is a registered 501c3 that has become the recognized leader in the support of FMD education, research, and awareness within public and medical communities.
To learn more about the Fibromuscular Dysplasia Society of America (FMDSA), please visit: https://www.fmdsa.org/
To learn more about Jobst Vascular Institute, please visit: https://www.promedica.org/services-and-conditions/institute/jobst-vascular-institute
About Fibromuscular Dysplasia Society of America (FMDSA)
The Fibromuscular Dysplasia Society of America (FMDSA) is a not-for-profit patient advocacy organization working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing support, and educating patients and the healthcare community. FMDSA works to inspire and facilitate collaboration between national and international organizations devoted to FMD and FMD-related research, education, and patient care.
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Original Press Release.
